Thalassemia is an blood disorder passed down through families (inherited) in which the body makes an abnormal form of hemoglobin, the protein in red blood cells that carries oxygen. The disorder results in excessive destruction of red blood cells and anemia.
There are many forms of thalassemia. Each type has many different subtypes. Both alpha and beta thalassemia include the following two forms:
•Thalassemia major
•Thalassemia minor
You must inherit the defective gene from both parents to develop thalassemia major.
Thalassemia minor occurs if you receive the defective gene from only one parent. Persons with this form of the disorder are carriers of the disease and do not have symptoms.
Beta thalassemia major is also called Cooley's anemia.
Treatment
Treatment for thalassemia major often involves regular blood transfusions and folate supplements.
Persons who receive significant numbers of blood transfusions need a treatment called chelation therapy to remove iron from the body.
Now on to a few whonderful kids who have Beta Thal that wait these children are agency specific please email me if you would like more info on them and to find out which agency has their file tsw1203@aol.com
First up is the Beautiul Danielle (MATCHED CONGRATS TO THE FAMILY)
Danielle was born 2/10/2010 still a baby she has beta thal and a port wine stain on the left side of her face. Isn't she simply beautiful she just needs parents to put a smile on her face! Still havent figured out why she is still waiting
Next up is the Handsome Sean
Sean was born 10/12/2008 he has beta thal and lives with a foster family. He is described as smart!
Next is Robert, Bob for short
Bob was born 2/23/2007 and his sn is Beta Thal. He is quite the cutie and looks like a heart stealer.
Next is the lovely Laila
Laila was born 1/1/2008 still a baby she is beautiful she has Beta Thal along with G6D deficiency which I think is another type of anemia.
Next is the cutie Simon
Simon was born 2/15/2008 he was born with a cleft lip and palate and Beta Thal. He looks like a mommy's boy and really needs someone to make him smile.
More agency specific no pictures on these little ones I do not know the exact blood disorders these children have but can direct you to the agency that has their files
Gender: Male
Date of Birth: 6/2009
Special Needs: Blood Disorders, Cleft Lip/Cleft Palate
Gender: Male
Date of Birth: 4/2009
Special Needs: Limb Differences, Blood Disorders
Gender: Male
Date of Birth: 1/2005
Special Needs: Blood Disorders
Gender: Male
Date of Birth: 8/2003
Special Needs: Cleft Lip/Cleft Palate, Blood Disorders
Gender: Male
Date of Birth: 3/1999
Special Needs: Blood Disorders
Gender: Male
Date of Birth: 9/1997
Special Needs: Blood Disorders (Ages out in Sept of next year)
Shared list Kids with Beta Thal: Please keep in mind the shared list is ever changing and at anytime these kids can be matched or moved to an agency specific list without my knowlegde please ask you agency if you would like more info on these little ones below!
Lizzie was born 9/30/1997 she ages out in september and looses the chance of ever finding a family then.
Next is Hannah. Hannah was born 7/2007 she does not have Beta Thal but another form of anemia. On hold for a family
Next is Mia. Mia was born 11/2006 and she also does not have beta thal but another form of anemia that is not listed.
Next is Ethan. Ethan was born 01/2006 and he has Beta Thal.
Claude is up next he was born 11/03/2005 his sn is Beta thal.
Sam is up next he was born 08/2004 and does not have beta thal but another blood disorder.
These next kids have no pictures but are all on the shared list unless otherwise noted I do not know somes exact birthday but can find it out if you would like it. Some may have Beta Thal and others may have a different blood disorder
Gender: Male
Date of Birth: 8/2003
Special Needs: Club foot/feet, Blood Disorders
Gender: Female
Date of Birth: 10/1998
Special Needs: Spina Bifida, Blood Disorders
Gender: Male
Date of Birth: 2/2005
Special Needs: Blood Disorders
Gender: Male
Date of Birth: 6/2008
Special Needs: Sexual Development differences, Blood Disorders
Female
10/25/2004
βThalassemia
Female
8/1/2006
β-thalassemia, slow motor development (can’t walk), slow physical development (height couldn’t reach the standard)
Female
8/12/1998
suggested to have combined Mediterranean Anemia (MA) (thalassemia) test to exclude MA. 3) Positive HbsAg, HbeAg and HbcAb
Male
1/4/2005
thalassemia
Female
3/18/1998
β-thalassemia and medium anemia, low growing development
Male
7/10/1999
G6PD deficiency
Female
11/9/2008
mild alimentary anemia；cerebral palsy；mentally development delay
Female
12/15/2003
Intellectual development delayed,concomitant esotropia,mild anemia
Male
10/6/2001
Anemia. Require oral drug treatment; Normal( low level for developmental index)
Female
9/29/2005
Right cross eye; congenital microcornea; adherent leucoma, motor retardation, minor anemia,SHE HAS A TWIN SISTER LISTED BELOW
Female
9/29/2005
blind （left eyeball has been removed）, mental retardation, minor anemia, TWIN SISTER
Male
3/16/2008
deformity of right foot (two toes of right foot), delayed motion, slight anemia
Male
3/26/2006
Mediterranean anemia
Female
1/4/2004
b-Mediterranean anemia
Male
5/12/2007
ß-Mediterranean anemia; growth retardation (4 items unqualified); intelligence development normal
Male
8/4/2006
β-Mediterranean anemia
Male
4/25/2005
Mediterranean anemia
Male
6/6/2004
congenital anopsia of both eyes, slow development, anemia
Female
4/1/2001
Mild CP, malnutritional anemia
Male
6/14/2000
Postoperative cross-foot, HB positive, mild anemia
Male
11/30/2008
mild anemia; left eyeball atrophy, right eyeball congenital glaucoma
